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Problems of organization of medical and social care for children with bronchopulmonary dysplasia.

Saltanat Sairankyzy, Daniyarova Anara, Dossybayev Murat, Datkhayeva Zaure, Anambayeva Aigul, Kemelbekov Kanatzhan*, Kuandykov Yerlan, IA Ishigov, ?S Babayeva, JM Akhtamanov, RB Zhumabekova, AM Kulmakhanbetova.

Background: Bronchopulmonary dysplasia is a controversial disease of premature infants, manifested by shortness of breath, recurrent pneumonia and bronchitis. In Kazakhstan, as well as throughout the world, in recent years, bronchial dysplasia is increasingly common in children. However, the problems of bronchopulmonary dysplasia in Kazakhstan are not fully understood. This study will focus on monitoring the medical and social care provided to children with bronchopulmonary dysplasia and their families in Almaty.

Methods: The study involved 34 children with bronchopulmonary dysplasia and their families and 64 children without bronchopulmonary dysplasia and their families. The research was carried out using a specially developed questionnaire.

Results: The average age of parents of children with BPD was higher than in the control group. It turned out that 52.9% of fathers and 5.9% of mothers of sick children smoke. Families with two or three children were more common (p=0.011). The share of families with disabled children was 17.6%. Despite this, the monthly income of families is low. The main reason for bad family relations is the child's illness (29.4%). After the birth of a child, only 29.4% of mothers worked in a profession, while the majority of mothers were engaged in household chores (64.7%). 47.1% of fathers had a job; 5.9% were unemployed. It turned out that the parents have good potential to rehabilitate the sick child, but they cannot get all the necessary medical services in the clinic. It turned out that only 17.6% of clinics have pulmonologists, despite the fact that sick children need regular follow-up by a pulmonologist.

Conclusion: The data obtained made it possible to identify the necessary medical and social problems for children with BPD. It is clear that such children and their families need government support.

Keywords:

Bronchopulmonary dysplasia, Premature birth, Medical and social care, Family.